So Long, Velcade

Today, I am truly, truly thankful that on Thursday, I received my last ever dose of Velcade aka Cillit Bang.

I grateful that I have come away after 24 injections of the stuff with only minor side effects. I can still do up my buttons, yes. Buttons. I am relieved that my neuropathy is now mild, with my ability to get a dead hand or arm now only slightly easy. I can now sit still, and for eighty percent of the time, I will not get cramp or pins and needles on the lefthand side of my body. I trust that in time, this will disappear completely. I still get dizzy on occasion (2-3 times a week as the questionnaire goes), and I hope too that this will disappear.

The above is the serious stuff, though it is not the main reason I am thankful today.

Today, the reason I am pleased that I am no longer going to be injected with this bleach-like-medicine, is because I know that the inflammations and marks currently irritating my waistband will go away and they are not going to be joined by more inflammations and marks in two weeks time. This week, the Velcade must have known our time was up and felt the need to leaving a parting gift. It has decided to replicate mosquito bites on my stomach. I mean, the big mean sort of mosquito thirsty for your blood. The stretch marks don’t help. I should not have indulged quite so much at Christmas. Imagine walking in a pair of jeans with an inflamed, red, itchy and dry stretch mark on your stomach, if you can’t imagine it, find a mosquito and eat some cream… It is far from pleasant, it is irritating and it hurts. It does not hurt like a fracture, but there is quite a sting to it. See?

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In the grand scheme of things, the above is minor. I know that, but it is the one thing today that has really made me think about My Myeloma. It’s the myeloma’s fault that is on my stomach along with 21 other blobs*. Fortunately, I have just whacked a healthy lashing of Lucas’ Papaw Ointment on my stomach all the way from Down Under, which I hope will work where the nappy rash ointment has not.

Let us all hope I do not scratch it in my sleep. That would not do at all.

EJB x

* In case you are worried about continuity, 22 of my 24 injections were on my stomach. The other two were on my arm.

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4 thoughts on “So Long, Velcade

  1. Kit says:

    EJ, your mosquito bite-like thingies may be shingles. Pls call your doc right away to rule them out (shitty possible side effect of velcade). If shingles, you need valcyclovir ASAP

  2. Marcie Champion says:

    Hi Emma, you don’t know me but I used to live in Bourne and thru a friends page on facebook I saw your blog and have been following it ever since. I think you are an inspiration to everyone, sick or healthy. I cannot even begin to imagine how things are for you yet your upbeat informative truthful and funny blog is just amazing. I’m not very good with words so I hope what I am trying to say does not sound to wanky. Mx

  3. EJ – I finished cycle 6 of PAD in December and am due for SCT in a few more weeks. My light chains (I have no m-spike) dropped just over 50% on PAD, but refused to go any further.

    I’m 39 – not quite as young as you, but still young enough to continue to be very surprised to find myself in myelomaland. I admire your good humour

    Good luck to you.

  4. […] Unfortunately, I still have to inject myself everyday. I do this in my stomach, specifically the left hand side of my stomach. The right side of my stomach is saved for Velcade. I would not want to get the Fragmin involved with the Velcade because I am sure I would just make those Velcade scars worse. Now, for those of you unsure what I am taking about, revisit this blog. It tells you what Velcade does. https://ejbones.wordpress.com/2013/01/05/so-long-velcade/. […]

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