A Month’s Supply

I am used to shoving drugs down my gob. Prior to my diagnosis, I was rather terrible at it, which the multi-vitamin tablets with a sell by date of March 2010, I found in my drawer would testify. I am now pretty good at remembering. I may have forgotten one or two doses after PADIMAC ended, but on reviewing the bag of drugs I was given yesterday for VTD, forgetting is not going to be possible. There are a lot of drugs and I fear I am going to have to be stringent with the timetable. I hate a timetable. It is day two and I am already behind schedule with the steroids. I would have liked to have taken them three hours ago. I’ll pay for that tonight.

My name is Emma Jane Jones and I am a drugs fiend. Apparently.

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The above is my month’s supply of drugs. Well, 28 days to be precise. The pile contains all my VTD meds bar the Velcade, which I get to go to the clinic for once a week. The bag itself contains 502 pills and 20 pre-made injections. I also have a further drug left over from PADIMAC, which I also have to take three times a week.

I just did a quick calculation in my head and I do not have enough syringes for 28 days. I will need to sort that. For this incredibly interesting exercise, that though is by the by. Honestly, this blog is so interesting, I am setting you up for a day of fun.

Now you have been warned, I am imagining that my daily drug routine is going to look something like this. Brace yourself.

I wake up, stretch, look at my phone and take one Lansoprazole to protect my stomach with a bit of water. Wait for 30 minutes to an hour before I take two 10mg and a 5mg tablets of MST (morphine), one Aciclovir, which I believe helps to fight of infection and a Allopurinal tablet, which even after a Google search, I do not have the slightest clue what it is for. I know I was told what it’s use was in September. I have since forgotten because the drugs made me, and I have thrown away the piece of paper telling me its purpose in my life.

On Velcade Days and the day after, I also need to take 10 2mg Dexamethasone tablets (steroids, sorry FUCKING STEROIDS!!!). I like to take these as early as possible, so they do not keep me awake. History tells me that they may well still keep me awake.

At some point in the afternoon, I treat myself to another Aciclovir tablet. Three times a week, on a Monday, Wednesday and Friday, this will be accompanied by a large glass of water and a Co-Trimoxazole tablet to prevent chest infections.

Around 19:00hrs, I will gently caress the skin around my stomach with an anti-septic wipe before I stab the area with a blood thinner known as Fragmin. This is required because the Thalidomide can cause blood clotting as well as birth defects in babies. You have been warned.

At Bedtime Garden, I then get to finish my day with another Aciclovir, one 30mg and one 5mg tablet of MST and two Thalidomide tablets. Apparently, it is best to take the latter at nighttime because it makes you sleepy. I can confirm that I had no issues with sleep last night, but it was only day one. I will assess over the next week when it is best for me to take this drug. Interesting huh?

So, the survey says that on a good day I am prescribed 12 tablets and an injection. On a Monday and Wednesday this increases by one to 13. On a Friday, which is currently my Velcade Day, I take 23 and the injection. On a Saturday, I take 22 pills.

It’s nothing really is it?

Well, I also have in my Drug Drawer some Domperidome, an anti sickness pill, that I can take as and when required and the good old faithful Paracetamol.

Remember, you British Tax Payers are paying for all of this and for that I thank you.

Must dash, my stomach is now lined with a fibrous milkshake, so I must take the ‘roids’.

Boom.

EJB x

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8 thoughts on “A Month’s Supply

  1. lexborgia says:

    -“Remember, you British Tax Payers are paying for all of this and for that I thank you.-”
    Not so loud E.J, the Americans may hear you, get pissed, and force Obama to drop a bomb on your location.

  2. Terri J says:

    You British are lucky with the taxes paying for meds. My daughter went through what you are doing now & luckily she had health insurance which she pays for & she still had to pay for the first $3,000 of meds. Now she is on Revilmid maintenance which costs $8,000 a month but luckily she got a grant from the Celgene Co. that makes Revilmid & she only pays $60. Why can’t they do that with all meds? I feel for you. I think of you every day because my daughter is only 32 & some of the things you say remind me of her.

  3. Koonyabob says:

    Hello EJB
    I have MM and live in Tasmania – Australia.
    I am on Cyclophasmide, dexamethasone and thalidomide with all the attendant anti nausea and bladder protection drugs that go with them. A good day for me is six pills a bad one is 30. I am on a 21 day cycle which costs me $100 Australian dollars. The real cost is about $3000 per cycle so the good old Australian taxpayer, one of which I remain, foots most of the bill.
    Just coming up to the end of my fifth cycle of chemo and preparing for the stem cell harvest and transplant. Still have my hair though it is thinning out. I tend to do a lot of cooking and late night reading on the steroid days.
    And a lot of laughing.

  4. Rekha V says:

    A rough calculation means I estimate that if you have been working since the age of 20, you have paid approx. 33,280 GBP in NI contributions. That money probably went to treatment for a few others at that time, and I bet they’d be okay with paying tax that now goes towards your pills and injections too. x

  5. Roobeedoo says:

    What you need is a nifty little spreadsheet and an alarm clock. In fact, I think this could be a very popular “app” on a mobile device – you could have alarms going off with different ring tones for different drugs. Dexy’s Midnight Runners could signal the steroids 😀

  6. I always think “domeperidone” sounds like “Don Perignon”. So when I’m given mine, I’m always a little disappointed. (Allopurinol protects your kidneys, btw).

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