Tag Archives: living with myeloma

Snow ⛄❄

Once upon a time, I used to love the snow. I do not love it anymore.

The current nationwide obsession with the weather is clearly an overreaction. It may be below zero, but this is not an Apocalypse. For me, and this may also be an overreaction, the snow represents incarceration. I am a prisoner to the snow and this is partly due to me being sensible and partly because I am scared of it.

My mood up until Friday was pleasant. I was not thinking about My Myeloma, or my treatment, I was just getting on with things, and when the snow started, it put a dampener on all of that. I have not left my flat since Friday, and to be honest, I have barely left my bed. I knew the snow was coming, every media outlet told me so, and I prepared for it. I panic bought and my flat is full of activities to keep me occupied. I have not done anything. I do not have the inclination to do anything and that is the snow induced depression talking. I have had days where I have stayed in the flat for longer than this, but that is not when I have felt this well. I feel reasonably healthy right now, and that is making this prison so much worse. My addiction to social networking is also making it worse. I see images of people having fun in the snow. In my pre-myeloma days I would have been one of those people. I would be making snow angels or taking a walk with my wellies on listening to the powder break beneath my feet with my imaginary boyfriend or A Twin, but I cannot do that now. I cannot pop into the pub after a winter walk to warm up, because I cannot go for a walk. I promised people I wouldn’t.

My experience of the snow amounts to this:

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On Friday, my wonderful break was interrupted by having to go to the hospital, which obviously reminded me of the fact that I have cancer. By the time I was at the hospital, I did not need to be reminded, the fear I had leaving my front door and getting into the ambulance was enough. A normal person could slip on the ice and break a bone. I do not know what damage I could cause to myself and this is constantly in the back of my mind and the reason I am still in my house. Such was my concern about the outdoors that I considered not going to a dinner in the evening because I did not want to chance a fall. Instead, with agreement with my friends, we settled on me walking slowly, accompanied. I had to be accompanied like a child. The whole affair made me feel like a pathetic little child, who is afraid of the snow. It was then that I decided I would keep my promise and not go out again.

If the snow was not enough to send my mood south, I had the hospital appointments with the inevitable waiting and anxiety, and the dinner. Not through anything my friends did, but more because I felt like I could not offer anything to the conversations. Try as I might, My Myeloma has changed me. Anything new from me is related to My Myeloma and this is not what people want to hear on a Friday night. It is important to me, and the things that can impact upon it. When one of my friends told me in jest that me talking about the weather was boring, I do not think she understood just how much this weather is creating a storm in my life and thus, how much it means to me. I talk and I think about it, because it stops me from doing things that I used to take for granted. I long for the day when the matter of boys and going out are at the forefront of my mind, but on Friday, it was clear to me that they are not and I do not know when they will be again. I cannot expect others to feel the gravity of my situation like I do. Others cannot understand how a comment or conversation would upset me, when I hardly know it myself, plus my sensitivities change daily. I am an emotional roller coaster. I am my own Nemesis. Since my diagnosis, the hardest thing to get my head round is realising that everybody else’s life goes on, even though mine does not.

I have spent most of the last 48 hours thinking about how boring I am and the paranoia has been in free flow. I cannot help but think that I am dull. At least the tears were hidden on Friday. If I cannot have fun with my friends, who can I have fun with?

I am frustrated because my imprisonment may appear like an over the top reaction, much like this spiral I have found myself on, but the stakes of me leaving the comfort of my flat are high.

It is what it is however and I have to deal with it, I just wish that I could do so without feeling sorry for myself. It’ll get better, starting around…. Now.

I blame the snow. It’s all the snows fault.

Bring on the rain please. ☔☔☔☀☔☔☔

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