Tag Archives: neutropenic

Stop It

Via telepathy

Dear Body,

I am sure you have a reason for my temperature climbing to 37.5 earlier this evening and staying there, but, I beg of you, please go down. I’m not asking for much, ideally, I want you to be 36.6 because that is what you usually always are, but, for tomorrow, I will accept 37.0. Go down. Just go down. I know you are worried about rejoining the real, non air conditioned British world, but it’s okay. Mamma Jones has fans. She also has food, and although you do not want a lot of it at the moment, it is of a much better quality than the stuff you can get in here. It’s not orange nor white for a start, and the ingredients have to be sought from a shop much larger than your local Londis. Sure, they have medicine in here, and people trained in it, but you would be far more comfortable sleeping on a bed that is not protected against incontinence. It’s true. Less sweat. You would also greatly benefit from having a full night’s sleep, absent from observation checks and the alarm clock of nurses, contracted food delivery people and tactless cleaners.

We are supposed to be going home tomorrow and I will not let you ruin it. If you do, we are done. You are dumped. You gave me myeloma. You are not going to take my early release away from me.

So, I think you’ll agree that we would both be better off at home. You know what you need to do… Go down. Just go down.

No way.

Emma x

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At 15:00hrs this afternoon, I returned to my room, hoping that I would be able to get through the night before I became neutropenic and before my diarrhoea worsened.

Evidently, this did not happen.

After hours of checking my temperature seeing it creep towards 38, and managing my frequent trips to the toilet, Mamma Jones called the Ambi Care helpline at 21:00hrs, and we were told to come in via Accident and Emergency.

So, a quick walk up to Warren Street Station, and down Euston Road later, to A&E I arrived. By which point, my fever was in full bloom, and I looked like , well, I do not know what I looked like. I looked unpleasant. Mamma Jones said I looked like a criminal.

They helpfully would not let me sit in Reception, which led to me standing in a corridor for 5 minutes. I was seen in the tiny A&E room before I was moved, in a wheelchair to the section where the exciting things happen on Casualty.

You hear a lot of crap here. We literally heard somebody crapping themselves, which definitely smelt ‘offensive’. There I was until 23:00hrs, during which time, I was squirming in pain, trying to think of the correct answer to the official medical barometer of pain, had tests taken and I was seen by a haematologist. He established that I was neutropenic. I had a temperature of 38.2 and I really did feel like an alien was going to come out of my belly.

Due to the smell of faeces, I was moved to a private room, whilst they located a bed for me. There were no beds in haematology. Brilliant. Slick. Efficient.

At 23:56hrs, I arrived in my room for the night, I say night, because there is no way I am staying on a general ward, under the care of nurses who do not know what myeloma is. I am tired, I am in pain, I am on oramorph, and still I can confirm that I do not like this room. I doubt that it has been properly cleaned for I have found a jug with urine in it and there are blood stains on the floor. I have been advised not to touch a lot in my room. Mamma Jones apologised for my reaction.

Now, to try and sleep. I can see Gower Street… I want the penthouse.

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Preparation II

Based on previous advice from the Medically Trained People https://ejbones.wordpress.com/2013/01/13/priorities-an-update/, somebody has had a super special wash to rid him of evil germs. He also got a new face, for a treat, just like my manicure…All courtesy of Mamma Jones of course for I do not have a tumble dryer and my hairdryer is temporarily on loan.

Unlike me, EMan is not looking forward to our vacation. He doesn’t appreciate the drop from the hospital bed to the floor. The arm cannot reach there… Any fall may also necessitate another shower and prolonged separation.


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